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WE Buchan SMA Fundraiser
WE Buchan
WE Buchan SMA Fundraiser
Story
Over the next four months WE Buchan are raising funds to support Spinal Muscular Atroophy (SMA). Our goal is to raise enough funds to purchase a Cough Assist Machine for patients. Valued at $10,000 this machine is a life saving device that is vital for daily respiratory care and critical for patients regardless of SMA type.
SMA is a genetic condition that affects the nerves that control muscle movement – the motor neurones. It affects muscles throughout the body, although the muscles – the shoulders, hips and back – are often most severely affected. SMA is a relatively common ‘rare disorder’ where approximately 1 in 6000 babies born are affected and about 1 in 40 people are genetic carriers. There is currently no cure for SMA however, through our fundraising and donations we can provide financial support to continue clinical trials to find a treatment.
WE Buchan will be participating in various events to drive awareness and raise funds for SMA. Join our team or come and support your friends and family!
Treadmill Challenge - 21st October 2016
On Friday 21st October, WE Buchan employees will participate in SMA Australia’s ‘Tread for SMA’. A treadmill will be installed in our offices, and we aim to collectively walk or run for 560 minutes – a full working day!
We'd really appreciate it if you could sponsor an employee and keep the treadmill going all day. Every $2 you spend is worth one minute. The run will also be livestreamed, so you can watch the whole team having fun while supporting a great cause.
Run Geelong (Melbourne team)
20 November 2016
Melbourne
We are making a difference for a cause that's close to our hearts. We appreciate any contribution, big or small.
Donations made through this platform are secure and will be remitted directly through to SMA.
Thanks so much for your support!
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Spinal Muscular Atrophy Association of Australia Inc
The Spinal Muscular Atrophy Association of Australia Inc. is the first national service supporting families and individuals affected by Spinal Muscular Atrophy. As a non-government funded charity we rely solely on philanthropic bodies and fundraising to provide support, information and assistive technology to members. Spinal Muscular Atrophy is a genetic disease divided into 4 types; leading to progressive muscle weakness and wastage. This wastage of muscles not only affectes the sufferes external muscles like arms and legs, but all their internal muscles like breathing, coughing and swallowing. The Associations Equipment and Resource Library has been developed to allow members to utilise specialised equipment, aids, and educational tools. ABS documents that 52 Australian lives 1. are lost to SMA and related syndromes ( Motor Neurone disease) each month. As there is no treatment, much less a cure, our fundraising also contributes to vital research. With 1 in 35 people indiscriminately carrying the SMN gene; greater awareness provided by SMA Australia alone is crucial to the education of future generations.
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