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HBF-Kawasaki Disease
Aoife Ni Dhonnchu
HBF-Kawasaki Disease
Story
Hi there!
We're running in the HBF, Run for a Reason, to raise awareness and funding for Kawasaki Disease. It's a condition which causes inflammation in the walls of some blood vessels and poor little Colt, Chris' nephew, Jem and Brant's beautiful son has it.
Jem, on Colt's journey navigating Kawasaki Disease;
At 5 months old Colt developed Kawasaki Disease which causes extreme inflammation of the blood vessels in the body and spent 2 months at the Monash Children's hospital being treated for this.
It is not currently know what specifically causes this disease only that it is triggered by viruses. Colt was an especially rare case of Kawasaki Disease in that it took several different intravenous treatments over the two months to get the inflammation under control. Most cases cases, if caught early enough, would be treated once and would recover in a couple of days.
Having had this inflammation for such a long period has caused Colt to suffer from severe dilation of the coronary arteries which he will live with for the rest for his life, also needing to be on daily blood thinners.
So we'd like you to open your wallets while we pop on our running shoes. Every little bit helps and your donation goes directly into helping and supporting little ones and their family affected by this disease.
Donations made of this platform are totally secure and will be remitted directly to the Kawasaki Disease Foundation Australia.
Thanks for you support!
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Kawasaki Disease Foundation Australia Inc.
Kawasaki Disease is a serious illness primarily affecting young children. It is the leading cause of acquired heart disease in children. Children may develop serious complications affecting the coronary arteries and aneurysms may develop. These are potentially the most serious complication and may lead to long term problems and can be fatal. The number of children affected is growing each year.
Kawasaki Disease Foundation Australia is a non-profit, national, all volunteer, parent-led charity dedicated to advancing Kawasaki Disease issues.
We provide education, information and support to families affected by Kawasaki Disease as well as assisting professionals who provide services to families affected by Kawasaki Disease.
We also raise funds for and participate in research studies into this mysterious disease.
The Foundation strives to educate the wider community about Kawasaki Disease in order to assist with early diagnosis and treatment.
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