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Melbourne Marathon
Brendan Moldrich
Melbourne Marathon
Story
Hi there!
For those of you that don't know, this October I will be attemting my first ever marathon and I will be trying to raise some money for Spinal Muscular Atrophy Australia
This year i have decided to run for a cause, the cause being for those who are unable to do the everyday things most of us take for granted, such as running. Im hoping that you can all support me in my pursuit of completing the 42.2km slog and in the process raising some money for those who aren't as lucky as I in being able to run any distance let alone a full marathon.
Spinal Muscular Atrophy is a rare inherited genetic muscle wasting disease that is characterised by a loss of nerve cells called motor neurons. The affected muscles not only include the muscles you see like your arms and legs, but all your internal muscles like breathing, coughing and swallowing. The loss of motor neurons leads to the progressive muscle weakness and wasting. The weakening of the respiratory muscles can lead to an increased tendency for pneumonia and other lung problems.
One person in thirty-five unknowingly carries this gene. If a couple already has a child with the disease, each of their subsequent children has a one in four chance of inheriting Spinal Muscular Atrophy.
Approximately 630 people die of Spinal Muscular Atrophy and related syndromes including motor neuron disease every year in Australia (ABS) 2008 and this disease is the biggest killer of babies under 2 years of age.
Donations made through this platform are secure and will be remitted directly through to my charity of choice.
Thanks so much for your support!
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Spinal Muscular Atrophy Association of Australia Inc
The Spinal Muscular Atrophy Association of Australia Inc. is the first national service supporting families and individuals affected by Spinal Muscular Atrophy. As a non-government funded charity we rely solely on philanthropic bodies and fundraising to provide support, information and assistive technology to members. Spinal Muscular Atrophy is a genetic disease divided into 4 types; leading to progressive muscle weakness and wastage. This wastage of muscles not only affectes the sufferes external muscles like arms and legs, but all their internal muscles like breathing, coughing and swallowing. The Associations Equipment and Resource Library has been developed to allow members to utilise specialised equipment, aids, and educational tools. ABS documents that 52 Australian lives 1. are lost to SMA and related syndromes ( Motor Neurone disease) each month. As there is no treatment, much less a cure, our fundraising also contributes to vital research. With 1 in 35 people indiscriminately carrying the SMN gene; greater awareness provided by SMA Australia alone is crucial to the education of future generations.
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